CONFIDENTIALITY COALITION ACTIVITY

As Congress continues to consider a new federal privacy law, several states have followed California’s lead and have introduced consumer privacy legislation that would impose new requirements on businesses to provide consumers with control of personal data and transparency of data practices.  Earlier this year, the House Energy and Commerce Committee and the Senate Committee on Commerce, Science, and Transportation held hearings examining data privacy issues and key privacy principles for a federal privacy law including enforcement, corporate responsibility, and consumer rights. In February, the Office of the National Coordinator for Health Information Technology (ONC) and the Centers for Medicare and Medicaid Services (CMS) released their anticipated interoperability and patient access proposed rules as required by the 21st Century Cures Act.  If finalized, these rules will have broad implications for the way data are shared among providers, health applications, and consumers.

2019

June 

  • The Coalition wrote the Office of the National Coordinator for Health Information Technology commenting on the Trusted Exchange Framework and Common Agreement (TEFCA) Draft 2.
  • The Coalition wrote the Centers for Medicare and Medicaid Services responding to a Notice of Proposed Rulemaking on interoperability and patient access.
  • The Coalition wrote the Office of the National Coordinator for Health Information Technology responding to a Notice of Proposed Rulemaking on interoperability and information blocking.

May

  • The Coalition submitted a statement for the record for the U.S. House of Representatives Committee on Energy and Commerce hearing on “Oversight of the Federal Trade Commission: Strengthening Protections for Americans’ Privacy and Data Security.”  The coalition supported the Federal Trade Commissions’ oversight of personal health records that reside in non-HIPAA covered entities.

April

  • The Confidentiality Coalition continues to hold meetings with congressional staff in the House and Senate as Congress considers national privacy legislation.  In these meetings, the Coalition emphasizes the importance of streamlining privacy laws across states to ensure the flow of appropriate health information that is necessary to improve health and healthcare.

March

  • The Coalition submitted a statement for the record for the U.S. House of Representatives Committee on Energy and Commerce hearing on “Protecting Consumer Privacy in the Era of Big Data.”
  • The Coalition submitted a statement for the record for the U.S. Senate Committee on Commerce, Science, and Transportation hearing on “Policy Principles for a Federal Data Privacy Framework in the United States.”

February 

  • The Coalition wrote the HHS Office for Civil Rights responding to a request for information on identifying provisions of the Privacy and Security Rules, promulgated pursuant to the Health Insurance Portability and Accountability Act, that impede the transformation to value-based healthcare or that limit or discourage coordinated care among individuals and Covered Entities without meaningfully contributing to the protection of the privacy or security of individuals’ PHI.

January

  • The Coalition wrote the National Institute of Standards and Technology (NIST) responding to a request for information on Developing a Privacy Framework.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Use the menu on the right to view activity from prior years.