ACTIVITY

State of Play: In June, a bipartisan, bicameral coalition introduced H.R. 8152, the American Data Privacy and Protection Act (ADPPA). This bill would establish a nationwide privacy framework and expand privacy protections to data not currently governed by the Health Insurance Portability and Accountability Act (HIPAA). The Federal Trade Commission (FTC) has also begun the process of rulemaking to regulate certain forms of commercial surveillance. Federal agencies are also continuing to examine further reporting of cybersecurity incidents. In September, the Cybersecurity and Infrastructure Security Agency (CISA) issued a request for information on implementation of breach reporting legislation that was included in legislation earlier this year. The Office of Science and Technology Policy (OSTP) at the White House has also released its Blueprint for an AI Bill of Rights to ensure that use of algorithmic tools does not lead to discriminatory outcomes.

2023

January

  • On January 19, Colleen Nguyen and Sean Sweeney with Sen. Mark Warner (D-VA) gave a presentation to the Confidentiality Coalition on Sen. Warner’s cybersecurity priorities.
2022

December

  • On December 1, the Confidentiality Coalition submitted comments to Sen. Mark Warner (D-VA) on his healthcare cybersecurity white paper.

November

  • On November 14, the Confidentiality Coalition submitted comments to the Cybersecurity and Infrastructure Security Agency (CISA) on their request for information on implmenting breah reporting legislation.
  • On November 14, the Confidentiality Coalition submitted comments to the Federal Insurance Office (FIO) on steps to provide catastrophic insurance coverage for cyber incidents.
  • On November 3, the Confidentiality Coalition held a walkthrough on the Federal Trade Commission’s (FTC) advanced notice of proposed rulemaking on commercial surveillance.

October

  • On October 31, the Confidentiality Coalition submitted comments to the Federal Trade Commission (FTC) on their advanced notice of proposed rulemaking on commercial surveillance.

September

  • On September 21, Melanie Fontes-Rainer, Director of the Office for Civil Rights (OCR) at the Department of Health and Human Services (HHS) gave a presentation to the Confidentiality Coalition on OCR’s strategic priorities.

July

  • On July 21, Jon Warner, US President for the Organisation for the Review of Health and Care Apps (ORCHA) gave a presentation to the Confidentiality Coalition on tools to protect patient privacy when using health apps.

June

  • On June 21, the Confidentiality CoalitionĀ  held a walkthrough of H.R. 8152, the American Data Privacy and Protection Act.
  • On June 13, the Confidentiality Coalition sent a letter to the House Committee on Energy and Commerce Subcommittee on Consumer Protection & Commerce for their hearing on, “Protecting America’s Consumers: Bipartisan Legislation to Strengthen Data Privacy and Security.”
  • On June 6, the Confidentiality Coalition submitted comments to the Department of Health and Human Services’ (HHS) Office for Civil Rights (OCR) on its request for information Regarding Considerations for implementing the Health Information Technology for Economic and Clinical Health (HITECH) Act.

May

  • On May 19, Nigel Cory with the Information Technology & Innovation Foundation (ITIF) gave a presentation to the Confidentiality Coalition on global health and genomic data localization and governance.
  • On May 12, the Confidentiality Coalition sent a letter to the SenateĀ  Committee on Health, Education, Labor and Pensions (HELP) for their hearing on, “Cybersecurity in the Health and Education Sectors.”
  • On May 5, the Confidentiality Coalition submitted comments to the Securities and Exchange Commission (SEC) on their proposed rule on cybersecurity incident reporting.
  • On May 4, the Healthcare Leadership Council and the Confidentiality Coalition held a joint webinar on, “Healthcare Privacy and Security 101.” Panelists included representatives from AHIP, IQVIA and Mayo Clinic.

April

  • On April 25, the Confidentiality Coalition submitted comments to the National Institute of Standards and Technology (NIST) on their request for information on revisions to the NIST Cybersecurity Framework.

March

  • On March 24, Jeff Rothblum with the Senate Homeland Security and Governmental Affairs Committee (HSGAC) gave a presentation to the Confidentiality Coalition on legislative activity to strengthen cybersecurity infrastructure.
  • On March 24, the Confidentiality Coalition and the Workgroup for Electronic Data Interchange wrote the Department of Health and Human Services (HHS) and the Department of Commerce encouraging the protection of patient data collected via third-party applications.
  • On March 11, the Confidentiality Coalition submitted comments to the Federal Trade Commission (FTC) and the Department of Justice (DOJ) information on their request for information on merger enforcement.

February

  • On February 17, the Confidentiality Coalition hosted a presentation and discussion on proposals to impose civil monetary penalties (CMPs) for violations of the HIPAA Privacy Rule.

January

  • On January 20, Rob Tennant Vice President for Federal Affairs with the Workgroup for Electronic Data Interchange (WEDI) gave a presentation to the Confidentiality Coalition on legislative and regulatory advocacy on privacy for 2022.